4 things...
I called Ainsley's Neuromuscular doctor on Friday to see if they had an up-date on her second test to explore the FSHD diagnosis. |
They are assuming that her deletion is related to FSHD, but they need to "keep taking steps towards proving it/explaining it with testing". This further testing will take 3-4 weeks..... |
1. Don't doubt God--this is Ainsley's life, make it the best. |
2. Get healthy and be strong for Ainsley. |
3. Teach others about FSHD and how to support Ainsley. |
4. Always encourage Ainsley to let her light shine. |
"But they who wait for
the Lord shall renew their strength; they shall mount up with wings
like eagles; they shall run and not be weary; they shall walk and not
faint." -Isaiah 40:31
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