A sigh of relief!

This is a long post!  The cliff notes version:  We received GREAT results today!  Ainsley's hearing test today showed that she has a mild hearing loss in both ears--these are almost the identical results we've seen with her past four tests.  The profound loss they thought she had last week was most likely due to fluid remaining after her tube surgery.  We will continue with a hearing aid for her R ear and may also get one in the future for her L ear depending on her language development.  Her CT results will be back mid next week to see if she has any signs of the syndrome, but they think that is unlikely at this point. A VERY good day at the Cohenour house!!

Ainsley woke up at 5:50 am today and had her milk.  She couldn't eat any solid food after midnight, but could have milk until 6:30 am.  She drank 7 oz!
We did our best to keep A busy this morning so she would keep her mind off of food!

Ryan had to go in for a meeting from 9-10 am, so little miss and I drove around before heading to the hospital.  I was so worried about her being uncomfortable, but she took a little cat nap while I drove.
We picked Ryan up and Ainsley had her last bit of liquid before her test--2 oz of apple juice at 10:15 am, we told her to savor every drop!

We took A to the otolaryngology clinic first to make sure her ears looked clear and that her tubes were open.  We were able to talk with one of Ainsley's classmate's dad who is a fellow in that clinic.  He was so good to hear Ainsley's story and offer advice.  He had reviewed Ainsley's chart and was trying to prepare us that the test today would likely be the same as last week since the loss was so profound.  He said he would call later today with the results.
Off to radiology to get checked in for her CT.  Her little radio flyer car came in SO handy today!



I love this sweet picture of Ainsley and her daddy!

At noon, the sedation nurse put numbing cream on 4 locations so she could get a good IV location for Ainsley.  I had two prayers today (1) I asked God for black and white results.  I wanted to know specifically what we were dealing with.  We've been operating in the grey this past week, not truly understanding why she had such a profound loss and (2) I wanted the nurses and doctors who worked with Ainsley today to see her not as a number and just another patient but as a precious baby girl.  I'm thankful both of those prayers were answered today!


The nurse in the back was an answer to prayer--she spent 3 hours with Ainsley today.  She put in her iv, took her to her CT scan, watched her vitals closely and...she is our neighbor.  She is just a few houses from us, we enjoyed chatting with her--she kept us in such good spirits!  She has a true gift for working with little ones and their families!

IV in and Ainsley was tired and hungry at this point.  She is such a trooper!  She is a strong, strong little girl!


We were so thankful that we were with Ainsley 95% of the time today.  The only time we weren't with her was during her 10 minute CT scan.  I was able to hold her as they gave her the sedation meds in her IV. 

Off to CT!

Ryan and I tried to stay positive while Ainsley was off to her CT test.  
Ainsley came back to the recovery room and the audiologists came up and hooked her up for her Auditory Brain Response.  She was still sedated at this time they actually had to give her 2 and 1/2 doses of the meds since she was testing for so long.  The meds make her pale, but her color returned when she woke up.

The first sound they put in her ear made her JUMP--we knew that was a great sign!!  The audiologist talked with us all throughout the test and let us know the responses she was giving today was in line with her testing in July, March and last Feb--mild loss in both ears!!  Almost the exact same results--that was just what we had asked for, black and white results!!!  We were SO, SO thankful her hearing was back to the previous levels--but wished we didn't have to put Ainsley through this additional testing today and the worry and stress we and our family have been through this week....but all in all we are thankful that her hearing is not profound!
Ainsley had SO much meds that she has been asleep for a long time today.  It took her an hour to wake up and drink some juice before we could take her home.  The audiologist said that her results last week were most likely a result of fluid remaining in the ear after the surgery.  They removed a lot of fluid and put the tubes in, but some fluid was likely still remaining.  
Little miss was sleep eating when we brought her home, she was SO tired and SO hungry!

We all took a nap tonight and woke up at 9:45 pm....Ainsley is completely off with her sleep, so it will be a long, long night :)!
She was back to her playful self tonight!
Ryan knowing we were in for a long night went to get me a diet coke and Ainsley some milk, but not before giving Ainsley one last hug.  We are one happy family tonight knowing his little girl is going to be okay.  Thank you to everyone who has prayed for our sweet girl this week!

"He is my refuge and my fortress, my God in Him I will trust"  -Psalm 91:2

Comments

Sabrina said…
YAY, I am so happy for you and your family..that is wonderful news. I'm sorry you had to go through that big scare, on the positive side though her mild hearing loss doesn't feel as terrible. God Bless.
Anonymous said…
What a relief. I couldn't be happier for your family. Pure joy!
Anonymous said…
I am so thankful to hear these wonderful results! Ainsley had been through so much

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