Up-date on Neurology visit

Thanks everyone for your thoughts and prayers for our little miss today! We spent our entire morning at the peds speciality clinic--neurology.

Ainsley and I before her appointment in the hospital walk-way. I was all smiles here--but seriously a hot mess! I read alot about her condition last night on-line and was a nervous wreck!


Since they squeezed us in between appointments--we had to wait over 2 1/2 hrs to see the doctor.
Off came the cute St. Pats day outfit--Ainsley weighed in at 16 lbs 14 oz!!


To pass the time--Ryan played some solitaire!


We practiced some standing!


After an 1 1/2 hrs of waiting--we played hang man on this cute chalk board.


We broke into our emergency store of formula--these to go bottles are expensive, but in a pinch are great!


Our little miss got a little sleepy after hour 2 of waiting :).


She took a little nap--and a few minutes later around 11:45 am the doctor arrived!


Good news: neurologically, she looks great! Some concerns: he confirmed her head is flatted on one side and her ears are off a bit due to that flattening. He confirmed we needed a CT before we move forward.

Based on the CT results they will (1) Worst case scenario: if her bone plates are fused they will need to do surgery (very rare) (2) More likely: she will need a band/helmet to help with the flattening.

We are waiting on a call back for them to schedule the CT--hopefully they will fit it in next week.

A sweet friend sent me a card today that says "God doesn't give us more than we can handle"...SO true! He knows our limits and has brought in good family, friends and doctors to help support our little girl through all of this.

Comments

Bob Allison said…
What a little Angel. She is so cute and seems to be taking it all in stride. I love her smile. I got her an Easter card the other day then I see Easter is at the end of April. Expect to see card soon!

Love ya,

Dad

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