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This is our little miss at church today--she loves to "talk" during the sermon...and is a really LOUD talker! We only had to take her out of church and walk around twice today--that is pretty good!
Our friends and family are having a hard time keeping up with our little Ainsley's medical conditions and at times we are too...so I thought I'd give an up-date on our beautiful little girl and what she's been through recently because we currently are juggling 3 conditions:
1. Hypothyroidism: Ainsley was born with this condition and takes a pill a day which gives her body what she needs since her thyroid isn't working. She sees her specialist every 3 months and gets blood work every 6 weeks to monitor her levels and make sure she is on the right does. We are thankful this is totally manageable!
2. Hearing: Ainsley has failed several hearing tests and in February was sedated to do a more thorough test--the results were..she needs hearing aids because she failed that test too...and then they put tubes in her ears because they thought the hearing loss was due to fluid. Thankfully she responded well to the tubes and she gets the sedated hearing test again next Monday to determine if there is hearing loss and if she needs hearing aids. We are praying that she passes the test next Monday. The test reeks havoc on her little body--because she is normally drowsy/sleeping all day.
3. On Friday we learned of #3 :(. Ainsley's head as been flat on one side for a while--our doctor sent her to physical therapy to check her neck muscle function to make sure she didn't have muscle damage which would make her favor one side. I took Ainsley myself on Friday afternoon to PT, because I thought it was just a routine visit to learn some tips for strengthening her neck. Good news--her neck muscle is great. Bad news--the head is broken down into 4 quadrants and Ainsley is failing in 3 of them due to (flat right side of her head, and the other two are her ears being off center front to back due to the flatting of the head). I thankfully had the nicest physical therapist who understood how shocked I was a took a long time to explain what steps we need to take next to help our baby girl. Our next steps are a CT scan to determine if there is any damage in the brain--she said this was HIGHLY unlikely because she is hitting all of her milestones (praise God for that)! and then she would need to be fitted with a helmet to help with the flatting of the head and the ears. She would need to wear this 24/7!
I left the doctor in a state of shock and thought can we handle this? Yet another thing to tackle..how much can Ainsley take--another sedated test...and then God stepped in. As I was loading up the stroller and Ainsley into the truck at the hospital (only 10 minutes after leaving the appointment), my doctor called me--at 5:30 pm on a Friday night. She was calling to follow-up on some lab work I had done earlier in the week that came back abnormal (that will be for another post--they are still waiting on one of my labs to come back which is checking for a clotting disorder, my one test that came back was high which she has never seen before). She said not to worry, so I'm not.
I was able to talk everything over with her that I just learned from the PT. It was AMAZING to be able to talk directly to Ainsley's doctor within minutes of learning this new news. God is good. She said she was going to consult with some neurologists on Monday and get back to us.
This weekend we let this new news settle in, loved on Ainsley, laughed with her, decided she is going to get one sparkly-pink-girly helmet and we are going to keep moving and enjoying life with her.
Last year when a friend was going though a rough time I sent her an email with this encouragement that I had read one time:
1. God is in control.
2. This too shall pass.
3. The best is yet to come.
Two months later--that same friend mailed me a card in late April after my mom passed away and it only said these three lines:
1. God is in control.
2. This too shall pass.
3. The best is yet to come.
It was so encouraging then and is encouraging now too.
We are going to help our little girl get through this new obstacle and then keep on moving and enjoy life with her.
Ainsley and me before we ran to town to do some errands--we washed the truck and shopped at Target!
Our friends and family are having a hard time keeping up with our little Ainsley's medical conditions and at times we are too...so I thought I'd give an up-date on our beautiful little girl and what she's been through recently because we currently are juggling 3 conditions:
1. Hypothyroidism: Ainsley was born with this condition and takes a pill a day which gives her body what she needs since her thyroid isn't working. She sees her specialist every 3 months and gets blood work every 6 weeks to monitor her levels and make sure she is on the right does. We are thankful this is totally manageable!
2. Hearing: Ainsley has failed several hearing tests and in February was sedated to do a more thorough test--the results were..she needs hearing aids because she failed that test too...and then they put tubes in her ears because they thought the hearing loss was due to fluid. Thankfully she responded well to the tubes and she gets the sedated hearing test again next Monday to determine if there is hearing loss and if she needs hearing aids. We are praying that she passes the test next Monday. The test reeks havoc on her little body--because she is normally drowsy/sleeping all day.
3. On Friday we learned of #3 :(. Ainsley's head as been flat on one side for a while--our doctor sent her to physical therapy to check her neck muscle function to make sure she didn't have muscle damage which would make her favor one side. I took Ainsley myself on Friday afternoon to PT, because I thought it was just a routine visit to learn some tips for strengthening her neck. Good news--her neck muscle is great. Bad news--the head is broken down into 4 quadrants and Ainsley is failing in 3 of them due to (flat right side of her head, and the other two are her ears being off center front to back due to the flatting of the head). I thankfully had the nicest physical therapist who understood how shocked I was a took a long time to explain what steps we need to take next to help our baby girl. Our next steps are a CT scan to determine if there is any damage in the brain--she said this was HIGHLY unlikely because she is hitting all of her milestones (praise God for that)! and then she would need to be fitted with a helmet to help with the flatting of the head and the ears. She would need to wear this 24/7!
I left the doctor in a state of shock and thought can we handle this? Yet another thing to tackle..how much can Ainsley take--another sedated test...and then God stepped in. As I was loading up the stroller and Ainsley into the truck at the hospital (only 10 minutes after leaving the appointment), my doctor called me--at 5:30 pm on a Friday night. She was calling to follow-up on some lab work I had done earlier in the week that came back abnormal (that will be for another post--they are still waiting on one of my labs to come back which is checking for a clotting disorder, my one test that came back was high which she has never seen before). She said not to worry, so I'm not.
I was able to talk everything over with her that I just learned from the PT. It was AMAZING to be able to talk directly to Ainsley's doctor within minutes of learning this new news. God is good. She said she was going to consult with some neurologists on Monday and get back to us.
This weekend we let this new news settle in, loved on Ainsley, laughed with her, decided she is going to get one sparkly-pink-girly helmet and we are going to keep moving and enjoying life with her.
Last year when a friend was going though a rough time I sent her an email with this encouragement that I had read one time:
1. God is in control.
2. This too shall pass.
3. The best is yet to come.
Two months later--that same friend mailed me a card in late April after my mom passed away and it only said these three lines:
1. God is in control.
2. This too shall pass.
3. The best is yet to come.
It was so encouraging then and is encouraging now too.
We are going to help our little girl get through this new obstacle and then keep on moving and enjoy life with her.
Ainsley and me before we ran to town to do some errands--we washed the truck and shopped at Target!
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