It has been extremely challenging over the past several months having pieces of information pointing to a potential diagnosis of muscular dystrophy of our sweet girl, but nothing concrete. We either want to put this behind us or move forward helping Ainsley have the fullest life despite this diagnosis. As a parent you want to fix things--find solutions, save the day. In this case, I am humbled and grateful that Dr. Leemers and his staff will be pouring over Ainsley's DNA in the next few weeks to help us get some answers and hopefully save the day with some good news. We all go in Monday morning for blood draws--they need samples from all three of us. They wanted us to do it on a Monday so it can arrive to the Netherlands before the weekend. We are thankful for our local doctors having connections and advocating for our sweet girl!
“Be strong and courageous. Do not be afraid or
terrified because of them, for the Lord your God goes with you; he will never
leave you nor forsake you.” –Deuteronomy 31:6
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