Do not lose heart--traveling to Mayo today
This time was different. He said, I think it is a good idea to bring her back. |
We trust him. He took over an hour with us in person this summer. Listening to us share our concerns. He thoroughly evaluated Ainsley. I feel that he genuinely cares about our daughter. |
She said her gut feeling is that Ainsley has FSHD, but we can’t diagnose her with more definitive clinical symptoms since her genetic testing was complicated. |
This was hard news to digest—her confirming what we are
seeing, even if it is just a gut instinct at this time.
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I am so grateful that within a week of receiving this news
from her local neuromuscular doctor that we can seek more answers and guidance
at Mayo.
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“Therefore we do not lose heart. Though outwardly we are wasting away, yet
inwardly we are being renewed day by day.” -2 Corinthians 4:16
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