Keep moving

Today Ainsey Belle (one of her many nicknames) went back to school today.  She was glad to be back to school!  Ryan and I headed back to work and the word of the day was...numb.  Neither of us has slept much recently, so we are exhausted.   We are still processing all of this--we are trying to be positive, yet real.

Tonight after work I asked Ryan what would make him feel better and he said a steak...ok, that I can do!  So we headed to TX Road House.  Don't those rolls and cinnamon butter make the world right?  Ainsley discovered butter rolls and ranch dressing tonight--we let her live it up! 

I have emailed every doctor/support specialist that has worked with Ainsley to get their advice yesterday--I finally went to sleep last night at 12:15 am after I couldn't think of anyone else to email to get their medical advice :).  I also today to check on her CT scan, so hopefully I’ll hear back from them tomorrow.  We just want to know a ball park of when they will get her in…a day, week, month—knowing will make us feel better.

We noticed tonight that there are definitely times when Ainsley doesn’t respond to us and other times she does—we don’t know what to make of that.  We did start a new baby signing video tonight so Ryan and I learned:  thank you, I love you, thirsty, come here, stop, yes, no…know we just need to incorporate them with Ainsley.  She signed mom tonight—made my day!

We did make some good progress today—we’ve set up a lunch meeting with a campus colleague who has cochlear implants.  She is going to tell us about her experience and give us some advice!  Ainsley’s Deaf and Hard of Hearing teacher said she could also connect us to families in the community who have been through the cochlear process so we can hear their stories.  Our doctor who we value her opinion so much emailed us back to let us know she wants to refer Ainsley to the CDD (Center for Disease and Disability) to get a language specialist working with her. 

Good progress for day two—we’ll just keep plugging away at this!